The Lived Experience of Mothers with an Autistic Child in Addis Ababa: A Phenomenological Study

Abstract

This study is aimed at describing the essence of the lived experience of mothers with autistic children. Identifying contexts or situations that influence the experience of mothers for having an autistic child was also assessed. A qualitative research approach through the application of phenomenological approach was employed. The social constructivist paradigm was applied in exploring and documenting lived experiences of mothers. Three mothers with autistic children were purposively approached and ethical principles were followed during data collection. An in-depth and semi-structured interview was conducted with mothers that lasted from 20 to 40 minutes. The data analysis conducted revealed that having an autistic child has an impact on mothers in many ways including quitting a job, having limited social interaction, mood swings, and at times frustration. Misconceptions and a low level of societal understanding of autistic children and their associated mothers were also highlighted as the second theme cluster of the study. Mothers indicated public transport and mainstream schools as the most difficult places to deal with autistic children. Mothers also indicated challenges concerning getting the diagnosis, treatment, and support services for their children. Praying, consuming alcohol, crying, and accepting the case as a gift from God were identified as coping mechanisms by mothers to deal with challenges and stressful situations emanating from being a mother of an autistic child.